Toddler’s near death experience after GP’s alleged misdiagnosis

By Lauren – Gold Coast Mum

When Jessie Leigh-Jay Ashleigh took her frail 3-year-old daughter to hospital yesterday, with a suspected virus - as diagnosed by her local GP - little did she know her daughter was mere moments away from death.

Jessie’s daughter Mia is currently being treated in a Sydney hospital’s intensive care unit and has now been diagnosed with Type 1 diabetes.
A condition that will affect the toddler, and her family, for the rest of their lives.


Mia, in hospital after being diagnosed with Type 1 Diabetes. Image supplied to Gold Coast Mum.com
Mia, in hospital after being diagnosed with Type 1 Diabetes. Image supplied to Gold Coast Mum.com

Jessie, from North St Marys, on Sydney’s outskirts, said she wanted to share her story with Gold Coast Mum readers to warn other parents to follow their instincts when it comes to the health and well-being of their children.
 

“Follow your instincts. If I hadn't followed mine yesterday I would have lost my daughter.”
Jessie says her daughter started to show signs of being unwell on Friday, “she wouldn't eat, just constantly wanted to drink water or sleep. She wasn't her happy bubbly self”.

“She was fully toilet trained, but for these three days would always wet herself every two minutes.
The next day [Saturday] she woke up and she was still the same but this time vomiting everything she drank back up, a lot more weaker than the day before. We took her to the doctors. And he told us she was coming down with a virus and there's more symptoms to come.  So he gave us a script for medication,” Jessie shared via social media.

“Sunday morning she was worse couldn't stand on her own without wobbling. Wouldn't walk to anyone. Could just get her to take one step and then she'd fall. She was so weak. She lost all colour, went pale and had grey bags under her eyes.
I thought ‘this isn't a virus’.
I got her medication, and started it straight away. Less than an hour later (at this time we were at her cousin’s 2nd birthday) she vomited again. And I thought ‘that's it, I'm taking her to the hospital’. And so we did.”

Jessie said medical professionals knew something wasn’t right from the moment she and Mia presented to hospital.

“They took her straight in, asked us questions, what's been happening, how long has she been like this etc. So we told them. And also mentioned we were told it was a virus she had caught.

“Well, a few minutes later, bloods taken and test done (with struggle as her veins were so thin and blood was so dry), she was diagnosed with TYPE 1 DIABETES. I was shocked.

“We asked the nurse what would have happened if we continued to think it was just a virus and kept her home on medicine. She then told us; ‘One more hour and she would have slipped unconscious and passed away in her sleep’

“I was lost for words didn't know what to say, just started crying. She wouldn't open her eyes or even talk back to either of us or the nurses she was just too weak.

“After she was stabilised at Nepean hospital, she was then later transferred to Sydney children's hospital in Randwick. I was given a room to sleep in, while she was two floors down. I didn't want to leave her but I had to. The doctor said she'll need me a lot more tomorrow and it's best I get some sleep. So I did. 
I went down to her this morning and she's got colour back in her face she's responding to questions and she's looking around lifting her arms etc. I am so happy. She's going to be ok.”

Jessie says her daughter is a diabetic “for life now and has to have insulin injections every day”.  
“If that's what it takes to keep my daughter alive then that's what I'll do”.

Jessie with her daughter Mia in happier times. Image supplied to Gold Coast Mum.com
Jessie with her daughter Mia in happier times. Image supplied to Gold Coast Mum.com


Her message to other parents is to “always follow your instincts”.
“If I hadn't, I wouldn't be sitting in a hospital today with my darling daughter - instead I’d be planning her funeral. But thankfully I am not,” Jessie said.

“[I’m] not sure how long she will be in hospital. The rest we are still uncertain about until she's out of the ICU,” Jessie told Gold Coast Mum.

Jessie will also look into whether the GP’s alleged misdiagnosis is an issue that needs addressing.

“Because of that I could have lost her, would I be wrong to take this matter further?
I think I have every right,” she asked via social media.

According to the Mayo Clinic, Type 1 diabetes in children is a condition in which a child's pancreas no longer produces the insulin the child needs to survive, and where the missing insulin needs to be replaced. 


Possible symptoms of Type 1 Diabetes in children

* frequent urination, large amounts
* increased thirst
* dry mouth
* weight loss
* increased appetite
* feeling tired or weak
* nappy rash that continues despite medicated cream
* stomach aches
* nausea and vomiting
If you have any concerns, please seek medical advice.

For further information about juvenile diabetes, visit: http://www.jdrf.org.au/


WHAT WOULD BE YOUR REACTION? 

Do you know much about Type 1 Diabetes in children?


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8 comments

  1. Wow, that is so terrifying! Thank god they followed their instincts and got her to a hospital, the alternative doesn't bear thinking about.

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  2. Oh my Gosh, Lauren. Sorry, I had to stop myself reading through all of the details of this because it was so upsetting. That poor woman. Thank God she did follow her instincts and her little one is okay. You must always follow your gut when it comes to kids. That poor little darling. #teamIBOT

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  3. Oh this is terrifying. I totally agree with trusting your instincts and as a my that is what I do every times and I will fight for my instincts...

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  4. This happened to my 23 year old son, just last year, same thing 6 visits to a doctor at a mining/gas camp and was told he had an upper resp. infection. After his 6th visit to the doctor in 5 days he went back to his room for the night, he was found at 10.30 am the next morning in a coma on his bathroom floor. His body temp was 28 degrees.. He was airlifted to Brisbane. He was very lucky to survive and especially to survive without any brain damage or organ damage. Doctors need to be more aware....

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  5. I think there needs to be a media campaign on this issue as I have read some many reports the same, since this happened to my son. My son had moved out of home and had no idea about the symptoms. His only real symptom was a huge weight loss, we all thought this was from the shocking food at the camp....

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  6. What a frightening experience.
    It surprises how many mothers will turn to social media rather than erring on the side of caution and going straight to hospital though.
    Yes, the doctor was wrong but there is something else wrong with this story. Why are we so reluctant to take our children to hospital when they are clearly in need of medical attention?
    Let me make this clear, I don't blame this mother (though I am a little confused as to why she didn't get the medication on Saturday), it seems a very common mindset that going to hospital is overreacting and I think this needs to change.

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  7. Unacceptable! My now 24 year old daughter's diagnosis was almost missed 2 weeks before her 3rd birthday. I knew something was wrong. Her pediatrician patted me on the shoulder and told me she was "fine"--I moved to a female pediatrician whom I credit with saving my daughter's life. She listen to my concerns and did a simple urine test which revealed extremely high keytones. We escaped the almost in a coma part of how this disease claims young children. Why does the medical community continue to miss this? Mom's always know! Listen to us! Wake up world--T1 DIABETES NEEDS A CURE NOW!!!

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  8. Oh, that must have been terrifying. Thank God they got to the hospital in time. I can't even imagine their relief at being able to save her.
    I hope everything goes well in the future for them. xx

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