Date for your diary! Attention Gold Coast families!

Next Sunday I'll be making my return to the stage, to perform in a karaoke competition at the LIFT's family fun day at Southport's Broadwater Parklands to do my bit to support this gorgeous family.

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Four year old identical twin girls Lilly and Gabriella share a bond that would make most envious. 

The gorgeous Gold Coast girls - who love animals, Spongebob Squarepants and playing in the garden together - may be identical twins but a condition affecting Lilly means their parents Sheri and Peter will never have the chance to see their twin girls skipping around together hand in hand, something many parents may take for granted.

When the girls, who Sheri says are real tomboys are playing in the garden, "it's usually Lilly giving Gabriella rides on her wheelchair".

Lilly was born with a rare joint muscle and bone disorder called Arthrogryposis Multiplex Congenita.  
"She will never walk and has limited to no arm and hand movement," says Sheri.
"She is confined to a power wheelchair.  At the moment we dont have a wheelchair accessible car to transport Lilly around. So our fundraiser is to raise money to obtain one."



Sheri and Peter found out that Lilly had the rare condition at 18 weeks gestation.
Lilly and Gabriella were born, via emergency c-section at 32 weeks gestation, at the Mater Private Hospital in Brisbane.

"We have never personally met anyone who has the same condition.  It is very rare in Australia," Sheri says.
"I have only spoken to people via support groups on Facebook mainly in America."


The family have recently moved to Southport from three years over in England (where Sheri was raised before moving to Australia as a teenager) where Lilly was seeing a specialist and had numerous surgeries "including major foot correctional surgeries, tendon release surgery, blockages in her intestines removed, a bowel resection and an extra appendix removed. As well as numerous pin removal surgeries and serial casting".
"Her life will always consist of physio, occupational therapies and possibly more correctional surgeries in the future," Sheri says.
"The surgeon in the UK refused to do any more surgery on Lilly as he said she was too deeply affected in the bone and the surgery wasn't working."



Sheri, a hair extension technician, and husband Peter are hoping Gold Coast families will come out in force next Sunday June 15 to attend the family fun day that they have been working tirelessly to arrange.
It will be held at Southport Broadwater Parklands from 10am-3pm.


"We have sponsorship from Event Cinemas, Mitre 10, Kmart, Southport Sharks and local MP Robert Molhoek who is making a personal donation," Sheri says.
"The fun day will have face painting, bouncy castle and some other games and fun activities which will all be a gold coin donation. We will have a raffle generating on the day with great prizes. We also have the karaoke competition which is a $5 donation to enter and you can win up to $300 worth of prizes".

(And yes, being the karaoke queen that I am (or was), I'll be taking part, so hoping as many or you as possible can come along to watch/ join in/ have a laugh.)








Sheri says their charity LIFT - Lilly Iris Fundraising Trust has just been registered.  
"After we have obtained the wheelchair accessible car for Lilly we wish to continue our charity helping other sick or disabled children with much needed equipment, support services and gifts."



For further details, contact:
lillyirisfundraisingtrust@gmail.com or 0458183299 

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